FACT SHEET

Pain Concern is a charity offering information and support for people who live with pain, those who care for and about them ►helpline ► Pain Matters magazine ►free leaflets to help you manage your pain ►campaigning on pain

USING THE FACT SHEET

Self-help resources When writing to the non-profit organisations listed in this Fact Sheet please help by enclosing stamps for postage.
Library services You can request books and CDs from your local library. Some libraries operate a delivery service for disabled readers.
Amazon.co.uk Majority of titles available from http://www.amazon.co.uk.
Mail-order service GBGdirect, 24 Seward Street, London ECIV 3GB, Tel 0207 490 9911, Fax 020 7490 9908, e-mail orders@gbgdirect.com or enquiries@gbgdirect.com, mail-order service for books, videos and CD-Roms.
Listening Books 12 Lant Street, London SE1 1QH, Tel 0207 407 9417, http://www.listening-books.org.uk

PAIN CLINICS AND PAIN MANAGEMENT PROGRAMMES

The British Pain Society, 3rd Floor, Churchill House, 35 Red Lion Square, London WC1R 4SG, http://www.britishpainsociety.org. Information for you and your doctor about pain clinics and pain management programmes. Information for Patients series of booklets includes free booklet Understanding & Managing Pain. Tel: 020 7269 7840
http://www.britishpainsociety.org/patient_publications.htm - direct link to most recent publications.

MANAGING YOUR PAIN: USEFUL BOOKS, CDs, TAPES, WEBSITES

British Holistic Medical Association, Coping with Persistent Pain, CD and booklet by Dr James Hawkins. Relaxation, coping skills, advice. Available from BHMA, PO Box 371, Bridgwater, Somerset TA6 9BG: Tel 01278 722000: e-mail admin@bhma.org : http://www.bhma.org
Barrett, J, Dealing with Chronic Pain: the pain management approach, On Stream. An introduction to self-help, written by specialists at the Pain Management Centre in Douglas.
Caudill, M, Managing Pain Before It Manages You, Guildford Press. The self-help workbook of the pain management programme, New England Deaconess Hospital.
Cole, F, & Macdonald, H, Overcoming Chronic Pain: A self-help guide using cognitive behavioural techniques, Robinson.
Healthtalkonline, People’s experiences of living with chronic pain. You can watch, listen to or read their interviews, find reliable information on treatment choices and where to find support, http://www.healthtalkonline.org.
Dahl, J & Lundgren, T, Living Beyond Your Pain: Using acceptance & commitment therapy to ease chronic pain. New Harbinger.
Hadjistavropoulos, T & H, Pain Management for Older Adults, IASP. Self-help guide specially written for older people. Also helpful for family members, caregivers and health professionals. Available from Pain Concern, 1 Civic Square, Tranent, EH33 1LH, £18.90.
Jamison, R, Learning to Master Your Chronic Pain, Professional Resource Press, Sarasota, Florida, a self-help workbook based on the pain management programme used at Brigham & Women’s Hospital, Boston, Massachusetts. CD also available.
Lewandowski, M, The Chronic Pain Care Workbook: A self- treatment approach to pain relief using the Behavioral Assessment of Pain Questionnaire, various self-assessment quizzes lead to individual self-management recommendations, New Harbinger.
Leeds Pallium, DVD on Neuropathic Pain, http://lutube.leeds.ac.uk/hcssjc/
Nicholas, M, Manage your Pain: Practical & positive ways of adapting to chronic pain, Souvenir Press. Self-help guide written by pain specialists at the pain management centre in Sydney, Australia.
Pain Relief Foundation, a series of CDs/tapes based on the pain management programme used at Walton Hospital, Coping with Pain, Coping with Headaches and Migraine, Coping with Back Pain, Feeling Good (assertiveness & self esteem), available as Pain Management Packs or individually. Also The Relaxation Kit. Details from Talking Life, PO Box 1, Wirral, Merseyside L47 7DD, Tel 0151 632 1206 (enquiries), 0151 632 0662 (credit card sales), website http://www.talkinglife.co.uk/.
Rothrock, R, & D’Amore, Gabriella, The Illustrated Guide to Better Sex for People with Chronic Pain, Morrisville, USA. This booklet is available from Pain Concern, 1 Civic Square, Tranent, EH33 1LH.
Seppala, M & Martin, D, Pain-Free Living for Drug-Free People: A guide for pain management in recovery, Hazelden. A unique resource for people in recovery from addiction who also experience persistent pain.
Turk, D & Winter, F, The Pain Survival Guide: How to reclaim your life, American Psychological Association. 10-step programme (”A must-read book!” Penny Cowan, American Chronic Pain Association)


Benson, H, & Stuart, E, The Wellness Book, Birch Lane Press, a self-help workbook based on the programmes used at New England Deaconess Hospital to help patients gain better control over stress, chronic pain and illness.
British Holistic Medical Association, 59 Lansdowne Place, Hove, East Sussex, Tel 01273 725951. Tapes for stress, relaxation, sleep, meditation. http://www.bhma.org
Breathworks, CDs for managing pain, illness and stress with guided mindfulness meditation, Body Scan, Mindfulness of Breathing, Kindly Awareness. Adapts a Buddhist approach to the management of pain and stress. Breathworks, 16-20 Turner Street, Manchester M4 1DZ ; Tel 0161 834 1110; http://www.breathworks-mindfulness.co.uk
Catalano, E, Getting to Sleep, New Harbinger, also Outwitting Insomnia, Lyons Press, both include a helpful chapter on sleep and chronic pain.
Davis, M, The Relaxation & Stress Reduction Workbook, New Harbinger.
Eimer, B, Hypnotize Yourself out of Pain Now! Crown House Publishing. Self-hypnosis techniques for managing pain. Includes a CD.
Fife NHS Relaxation DVD, http://mood.ecomscotland.net/content.asp?ArticleCode=1180
Kabat-Zinn, J, Full Catastrophe Living: How to cope with stress, pain and illness using mindfulness meditation, Piatkus. The programme used at University of Massachusetts Medical Center. Adapts a Buddhist approach to the management of pain and stress.
Phillips, M, Reversing Chronic Pain, North Atlantic Books, a mind-body approach helpful for tackling the fear and trauma that can accompany pain.
Talking Life, PO Box 1, Wirral, Merseyside CH47 7DD Tel 0151 632 1206 (enquiries), 0151 632 0662 (credit card sales), website http://www.talkinglife.co.uk CDs, tapes and books for stress, workplace stress, anxiety, depression, sleep, tranquilliser addiction, asthma, infertility, bereavement.

ACCOUNTS OF MANAGING PAIN

Burch, Vidyamala, Living Well with Pain & Illness: The mindful way to free yourself from suffering, written by a practising Buddhist and founder of Breathworks. ‘Her approach could save your life – and give it back to you’ Jon Kabat-Zinn.
Sadler, J, Pain Relief Without Drugs, Healing Arts Press. How to get in touch with your inner self to encourage healing, incorporates some elements of New Age thinking, includes CD. See Jan Sadler’s Pain Support website: http://www.painsupport.co.uk.
Shone, N, Coping Successfully with Pain, Sheldon Press, written by a former patient of the pain management programme at Walton Hospital.

FITNESS AND MASSAGE: USEFUL BOOKS

Sobel, D, & Klein, A, Backache: the complete guide to relief, Robinson Publishing. Useful section on exercise.
Sutcliffe,J, Exercise For A Strong Back: A complete programme for long-lasting back health, Carroll & Brown.
Krasevec, J, & Grimes, D, HydroRobics, Human Kinetics.
Graham, M, Keep Moving Keep Young: Gentle yoga exercises, Conker Productions. Recommended by chronic pain specialist Liz MacLeod. Available from Pain Concern, 1 Civic Square, Tranent, EH33 1LH £9.50.
Sutcliffe, J, The Body Maintenance Manual, Reader’s Digest Association.
Davies, C, The Trigger Point Therapy Workbook, New Harbinger. Self-massage techniques for soft tissue pain.
Lidell, L, The New Book of Massage: The complete step-by-step guide to Eastern and Western techniques, Ebury Press.

SOME COMMON PAIN PROBLEMS: USEFUL BOOKS

Hebert, L A, Sex and Back Pain: Advice on restoring comfortable sex lost to back pain, Impacc.
McKenzie, R, Treat Your Own Back, Spinal Publications; also Treat Your Own Neck, Spinal Publications.
Parker, H, & Main, C J, Living with Back Pain, Manchester University Press.
Roland, M, The Back Book, The Stationery Office.
Tanner, J, Better back: A self-help guide to preventing and treating back pain, Dorling Kindersley; also Royal Society of Medicine: Your Guide to Back Pain, Hodder.
DeGood, D, The Headache & Neck Pain Workbook. A mind and body programme. New Harbinger.
Lorig, K, & Fries, J, The Arthritis Helpbook, Addison-Wesley. Self-management of arthritis and fibromyalgia.
Janowitz, H, Your Gut Feelings, Oxford University Press. A guide to living better with intestinal problems.
Baird, P, Be Good to Your Gut: Recipes and Tips for People with Digestive Problems, Blackwell Healthcare. Constipation, irritable bowel syndrome, gas, heartburn, indigestion, slow stomach emptying, and a new look at lactose.
Lang, S, & Patt, R, You Don't Have to Suffer, Oxford University Press. A guide to relieving cancer pain.
Lorig, K, Living a Healthy Life with Chronic Conditions: Self-management of heart disease, arthritis, stroke, diabetes, asthma, bronchitis, emphysema & others, Bull Publishing.
BMA Family Doctor Series. Helpful booklets on a wide range of chronic conditions, tel 01202 668330, http://www.familydoctor.co.uk.

COMPLEMENTARY THERAPIES AND ADDITIONAL READING

Achterberg, J, Rituals of Healing: Using imagery for health & wellness, Bantam, USA. Available from GBFdirect, 24 Seward Street, London ECIV 3GB : Tel 0207 490 9911.
Alman, B, & Lambrou, P, Self-Hypnosis: The complete manual for health & self-change, Souvenir Press.
British Medical Association, Concise Guide to Medicines and Drugs, Dorling Kindersley.
Butler, G, & Hope, T, Manage Your Mind: The mental fitness guide, Oxford University Press. Looks at how you can improve your mood and your effectiveness, develop fulfilling relationships and overcome anxiety and depression.
Donoghue, P, & Siegel, M, Sick and Tired of Feeling Sick and Tired: Living with invisible chronic illness, W W Norton.
Healthy Eating series of books published by Kyle Cathy, includes Healthy Eating for your Heart, for Lower Cholesterol, for Diabetes, for IBS.
Herbert, C, Understanding your reactions to trauma: a booklet for survivors of trauma and their families, available from the Oxford Stress and Trauma Centre, 8a Market Square, Whitney, Oxon OX8 7BB, Tel01993 779077.
Herman, J L, Trauma and Recovery: From domestic abuse to political terror, Pandora.
Jackson, M, Pain: The science and culture of why we hurt, Bloomsbury.
Kushner, H, When Bad Things Happen to Good People, Pan. Rabbi Harold Kushner’s classic book on suffering and belief.
Lam, P, & Horstman, J, Overcoming Arthritis: A holistic plan & unique tai chi programme to relieve pain and restore mobility, Dorling Kindersley.
McKay, M, Messages: The communication skills book, New Harbinger.
Marshall, J, The New Eat for Life Diet, Vermilion.
Peters, D, New Medicine: How to use complementary & conventional medicine together for safe effective treatment, Dorling Kindersley.
Thomas, R, Alternative Answers to Pain, Grange Books Ltd.
Reader’s Digest Association, Managing Pain: Health and healing the natural way.
Voluntary Aid Societies, Carer's Handbook, Dorling Kindersley. Looking after ill, disabled & elderly people.
Wall, P, Pain: The science of suffering, Weidenfeld & Nicolson. Explores the nature and causes of pain.
Williams, C, Overcoming Depression: A five areas approach, Arnold.
Wilson, J, & Myers, J, Self Help Groups: Getting started, keeping going, R. A. Wilson. Available from Self Help Nottingham, tel 0115 911 1662, http://www.selfhelp.org.uk.

ELECTRICAL NERVE STIMULATION FOR PAIN RELIEF (TENS)

Pain clinics, physiotherapy departments and GPs will advise on TENS machines and some will supply TENS machines. If you buy a machine arrange for a free trial period. Unsuitable for any person with a pacemaker.
National Benevolent Fund for the Aged, 1 Leslie Grove Place, Croydon CR0 6TJ, Tel 0208 688 6655, http://www.nbfa.org.uk, Donations of TENS machines to older people in UK in receipt of income-related benefit.

TEACHERS AND COMPLEMENTARY THERAPISTS

To find out about gentle exercise classes in your area contact your local authority and your local sports centre. Some centres have a GP-referral exercise scheme. Take medical advice and explain your condition to your teacher.
British Psychological Society: St Andrews House, 48 Princess Road East, Leicester LE1 7DR, tel 0116 254 9568, http://www.bps.org.uk.
British Autogenic Society: Royal London Homoeopathic Hospital, Great Ormond Street, London, WC1N 3HR, tel 020 7391 8908, http://www.autogenic-therapy.org.uk.
Breathworks: 16-20 Turner Street, Manchester M4 1DZ ; Tel 0161 834 1110; e-mail info@breathworks.co.uk : http://www.breathworks-mindfulness.co.uk.
The Society of Teachers of the Alexander Technique: 1st floor Linton House, 39-51 Highgate Road, London MW5 1RS, tel 0845 230 7828, http://www.stat.org.uk.
The Feldenkrais Guild UK: PO Box 370, London, N10 3XA : Tel 07000 785 506: http://www.feldenkrais.co.uk
The UK T’ai Chi Association: PO Box 159, Bromley, Kent BR1 3XX, tel 0208 263 6016, http://www.taichi-europe.com
The Tai Chi Union for Great Britain: 1 Littlemill Drive, Balmoral Gardens, Crookston, Glasgow G53 7GE : Tel 0141 810 3482: http://www.taichiunion.com.
Taoist Tai Chi Society of Great Britain, Bounstead Road, Blackheath, Colchester, Essex CO2 0DE, 01206 576167, http://www.taoist.org.uk.
British Wheel of Yoga: 25 Germyn Street, Sleaford, NG34 7RU, tel 01529 306851, http://www.bwy.org.uk
Iyengar Yoga Institute: 223a Randolph Avenue, London W9 1NL, tel 0207 624 3080, http://www.iyi.org.uk
Yoga Biomedical Trust: Yoga Therapy Centre, 9092 Pentonville Road, Islington, London N19HS : Tel 0207689 3040, http://www.yogatherapy.org
The Body Control Pilates Association: 6 Langly Street, London, WC2H 9JA : Tel 0207 379 3734 : http://www.bodycontrol.co.uk
Extend: Exercise teachers for elderly and/or less able people: 2 Place Farm, Wheathampstead, Herts, AL48SB : Tel 01582 832760, http://www.extend.org.uk
Chartered Society of Physiotherapy: 14 Bedford Row, London WC1R 4ED : Tel 020 7306 6666 : http://www.csp.org.uk
The Society of Chiropodists and Podiatrists: 1 Fellmonger’s Path, London SE1 3LY: Tel 0207 234 8620: http://www.feetforlife.org
British Association of Occupational Therapists: 106-114 Borough High Street, Southwark, London SE1 1LB : Tel 0207 357 6480 : http://www.cot.org.uk
The British Dietetic Association: 5th Floor, Charles House, 148/9 Great Charles Street, Queensway, Birmingham B3 3HT, Tel 0121 200 8080, http://www.bda.uk.com
Osteopathic Information Service: Osteopathy House, 176 Tower Bridge Road, London SE1 3LU : Tel 0207 357 6655: http://www.osteopathy.org.uk
British Chiropractic Association: Blagrave House, 17 Blagrave Street, Reading RG1 1QB : Tel 0118 950 5950 : http://www.chiropractic-uk.co.uk
British Society of Clinical and Academic Hypnosis: 28 Dale Park Gardens,Cookridge, Leeds, LS16 7PT, tel 0844 884 3116, http://www.bscah.com.
Acupuncture Association of Chartered Physiotherapists: see above under Chartered Society of Physiotherapy.
British Medical Acupuncture Society: BMAS House, 3 Winnington Court, Northwich, Cheshire CW8 1AQ : Tel 01606 786782 :
http://www.medical-acupuncture.co.uk
British Acupuncture Council: 63 Jeddo Road, London W12 9HQ : Tel 0208 735 0400 : http://www.acupuncture.org.uk
British Homeopathic Association: Hahnemann House, 29 Park Street West, Luton, LU1 3BE : Tel 0870 444 3950 : http://www.trusthomeopathy.org
National Institute of Medical Herbalists: Elm House, 54 Mary Arches Street, Exeter, EX4 3BA : Tel 01392 426022 : http://www.nimh.org.uk
Institute for Complementary Medicine: keeps the British Register of Complementary Practitioners; will give you information about practitioners in your area: PO Box 194, London SE16 7QZ: Tel 0207 237 5165 : Fax 020 7237 5175 : e-mail info@i-c-m.org.uk : http://www.i-c-m.org.uk

USEFUL ADDRESSES

Ability Net: Advice on adapting computers for the needs of those with disabilities: PO Box 94, Warwick CV34 5WS : Tel 01926 312847 : http://www.abilitynet.org.uk.
Action for ME: Third Floor, Canningford House, 38 Victoria Street, Bristol, BS1 6BY : Tel 0845 123 2380 http://www.afme.org.uk.
Action on Pain: 20 Necton Road, Little Dunham, Norfolk PE32 2DN, Tel 01760 725 993. http://www.action-on-pain.co.uk.
Action for the Victims of Medical Accidents: Tel 0845 123 23 52 (Mon-Fri, 10 am-12 noon, 2-4 pm), http://www.avma.org.uk.
Ankylosing Spondylitis Society, PO Box 179, Mayfield, E, Sussex TN20 6ZL, tel 01435 873527, http://www.nass.co.uk.
Arthritis Research Campaign (ARC): Copeman House, St Marys Court, St Marys Gate, Chesterfield Derbyshire S41 7TD : Tel 01246 558033 : email info@arc.org.uk : http://www.arc.org.uk.
Arthritis Care: 18 Stephenson Way, London NW1 2HD : Tel 020 7380 6500 : Helpline 0808 800 4050 (10 am - 4 pm, Mon – Fri) :
http://www.arthritiscare.org.uk
BackCare: 16 Elmtree Road, Teddington, Middlesex TW11 8ST, tel 0208 977 5474, helpline 0845 1302704 : http://www.backcare.org.uk
Benefit Enquiry Line: Advice on DSS benefits for people with illnesses, disabilities and carers: 0800 882200
British Brain & Spine Foundation: 7 Winchester House, Kennington Park, Cranmer Road, London SW9 6EJ, tel 0207 793 5900, helpline 0808 808 1000 : http://www.bbsf.org.uk
British Heart Foundation: 14 Fitzhardinge Street, London W1H 6DH, tel 0207 935 0185, heart information line 08750 70 80 70, http://www.bhf.org.uk
British Polio Fellowship: Eagle Office Centre, The Runway, South Ruislip, Middlesex, HA4 6SE, helpline 0800 0180586, http://www.britishpolio.org.uk
British Sjogren’s Syndrome Association: PO Box 10867, Birmingham B16 0ZW, helpline 0121 455 6549, Mon-Fri 9.30 am-4 pm, http://www.bssa.uk.net.
Carers UK: 20-25 Glasshouse Yard, London EC1A 4JT, Freefone 0808 808 7777, http://www.carersuk.org
Council for Involuntary Tranquilliser Addiction: 3-11 Mersey View, Waterloo, Liverpool, L22 6QA: Tel 0151 474 9626: Helpline 0151 932 0102 (10 am - 1 pm, Mon – Fri): http://www.citawithdrawal.org.uk.
The Cystitis and Overactive Bladder Foundation: Support for interstitial cystitis: 76 High Street, Stony Stratford, Buckinghamshire, MK11 1AH : Tel/Fax 01908 569169 : http://www.cobfoundation.org
Diabetes UK: 10 Park Way, London NI 7AA : Tel 0207 424 1000: Careline 0845 120 2960: http://www.diabetes.org.uk
Dial UK: Will put you in touch with local disability information & advice centres: St Catherines Tickhill Road, Doncaster, DN4 8QN : Tel/Mincom 01302 310123 : http://www.dialuk.info
Disability Alliance ERA: Disability Rights Handbook published annually: Universal House, 88 - 94 Wentworth Street, London E1 7SA : Tel 0207 247 8776 : Rights Advice Line 0207 247 8763 (Mon and Wed, 2 pm- 4 pm) or write for advice: http://www.disabilityalliance.org
Disabled Living Foundation: 380-384 Harrow Road, London W9 2HU : Tel 020 7289 6111 : Fax 0207 266 2922 : Helpline 0845 120 2960 (Mon-Fri 9-5) : http://www.dlf.org.uk
The Disablement Income Group Scotland: 5 Quayside Street, Edinburgh, EH6 6EJ: Tel 0131 555 2811 or 0845 123 2366, http://www.patient.co.uk/leaflets/disablement_income_group_scotland.htm.
Ehlers-Danlos Support Group: PO Box 337, Aldershot, GU12 6WZ : Tel 01252 690 940 : http://www.ehlers-danlos.org.
Endometriosis Society UK: 50 Westminster Palace Gardens, Artillery Row, London SW1P 1RR : Tel 0207 222 2781: Helpline 0808 808 2227: http://www.endometriosis-uk.org.
Expert Patients Programme runs courses to help people living with a long term health condition maintain their health and improve their quality of life, http://www.expertpatients.co.uk.
Fibromyalgia Association UK: FMA UK is the longest running UK FM charity and offers support to people with Fibromyalgia across the whole of the UK with numerous support groups, the busiest UK FM forum, and the monthly Fibromyalgia Focus magazine. We campaign at a local and national level to improve understanding and treatment of fibromyalgia. PO Box 206, Stourbridge, West Midlands DY9 8YL , tel 01384 895002, helpline 0845 345 2322, http://www.fibromyalgia-associationuk.org.
Gout Society, UK, PO Box 527, London WC1V 7YP, http://www.ukgoutsociety.org.
Guild of Disabled Homeworkers: Advice on self-employment for disabled people at home: 16 Fountain Street, Nailsworth, Gloucestershire, GL6 0BL: Tel 01453 835623 : Guild of Disabled Homeworkers
The Gut Trust, Unit 5, 53 Mowbray Street, Sheffield S3 8EN, tel 0114 272 3253, helpline 0872 300 4537, http://www.theguttrust.org
The Hypermobility Syndrome Association: 49 Orchard Crescent, Plymouth PL9 7NF, helpline 0845 345 4465, http://www.hypermobility.org
Lupus UK, St James’ House, Eastern Road, Romford, Essex RM1 1BA, tel 01708 731 251, http://www.lupusuk.org.uk.
Lymphoma Association: Po Box 386 Aylesbury, Bucks, HP20 2GA (01296) 619400 E-Mail: information@lymphoma.org.uk http://www.lymphoma.org.uk.
Macmillan CancerLine, 89 Albert Embankment, London SE1 7UQ, helpline 0808 8080 2020, http://www.macmillan.org.uk.
ME Association: 7 Apollo Office Court, Radclive Road, Gawcott, Bucks MK18 4DF : Tel 01280 818968 : ME Connect helpline 0870 444 1836 : http://www.meassociation.org.uk
Medical Advisory Service: Friendly advice on any health subject. Nurse-run Helplines: General Medical Helpline 01543 492 192 (6 – 8 pm); Men’s Health Helpline 020 8994 9874 (7 - 9 pm, Mon only) PO Box 3087, London W4 4ZP. Medical Advisory Service
Migraine Action: Unit 6, Oakley Hay Lodge Business Park, Great Folds Road, Great Oakley, Northants, NN18 9AS : Tel 01536 461 333: http://www.migraine.org.uk
The Migraine Trust: 2nd Floor, 55-56 Russell Square, London, WC1B 4HP, Tel 020 7462 6601, http://www.migrainetrust.org
Multiple Sclerosis Society, 372 Edgware Road, London NW2 6ND : Tel 0208 438 0700 : http://www.mssociety.org.uk
Multiple Sclerosis Trust, Spirella Building, Bridge Road, Letchworth Garden City, Hertfordshire SG6 4ET, Tel 01462 476700, http://www.mstrust.org.uk.
National Association for Colitis and Crohn’s Disease, 4 Beaumont House, Sutton Road, St Albans, Herts, AL1 5HH : Information line 0845 130 2233 : Fax 01727 862550 : e-mail nacc@nacc.org.uk : http://www.nacc.org.uk
NHSDirect:, information service, complex enquiries service 24-hour nurse-led Helpline 0845 4647: http://www.nhsdirect.nhs.uk
National Institute for Health and Clinical Excellence, MidCity Place, 71 High Holborn, London, WC1V 6NA: Tel +44 (0)845 003 7780: Fax +44 (0)845 003 7784: Email nice@nice.org.uk : http://www.nice.org.uk. NICE is an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health.
National Osteoporosis Society: Camerton, Bath, BA2 0PJ : Tel 01761 471771 : Helpline 0845 4500 230 : http://www.nos.org.uk.
National Rheumatoid Arthritis Society, Unit B4 Westacott Business Centre, Westacott Way, Littlewick Green, Maidenhead, Berks SL6 3RT, tel 01628 823524, helpline 0845 458 3969, http://www.rheumatoid.org.uk.
The Neuropathy Trust: PO Box 26, Nantwich, Cheshire CW5 5FP: advice line Neuropathy trust volunteers are available to offer support, for up to date information regarding times etc Tel 01270 611828: http://neurocentre.com/community/
Pain Association Scotland: Cramond House, Cramond Glebe Road, Edinburgh, EH4 6NS : Tel 0131 312 7955 : Freephone 0800 783 6059 :
http://www.chronicpaininfo.org
Pain Relief Foundation: Helpful leaflets on pain (enclose sae, 50p stamp, plus £1 to cover costs): Clinical Sciences Centre, University Hospital, Aintree, Lower Lane, Liverpool, L9 7AL : Tel 0151 529 5820 : http://www.painrelieffoundation.org.uk.
Parkinson’s Disease Society, 215 Vauxhall Bridge Road, London SW1V 1EJ, 020 7931 8080, helpline 0808 800 0303, http://www.parkinsons.org.uk.
The Patients Association: PO Box 935, Harrow, Middlesex, HA1 3YJ : Tel 0208 423 9111: patient-line Tel 0845 608 4455 : http://www.patients-association.com.
Pelvic Pain Support Network, PO Box 6559, Poole, Dorset BH12 9DP, http://www.pelvicpain.org.uk.
REMAP: Design and manufacture technical aids for disabled people where nothing commercial is available or will adapt existing equipment. Custom made and free: D9 Chaucer Business Park, Kemsing, Sevenoaks, Kent TN15 6YU, tel 0845 130 0456, http://www.remap.org.uk.
Research into Ageing: Booklet Exercise for Healthy Ageing, £4.00 inc p&p; video More Active More Often, £10 inc p&p: PO Box 32833, London, N1 9ZQ : Tel 0207 278 1114 : e-mail ria@ageing.org : http://www.ageing.org
Royal Association for Disability & Rehabilitation (RADAR): 12 City Forum, 250 City Road, London, EC1V 8AF : Tel 0207 250 3222 : http://www.radar.org.uk
Scoliosis Association UK: 2Ivebury Court, 323 327 Latimer Road, London, W10 6RA: Tel 020 8964 5343 : Helpline 0208964 1166 :
e-mail info@sauk.org.uk : http://www.sauk.org.uk
Scope: Monthly paper Disability Now: PO Box 833, Milton Keynes, MK12 5NY : Tel 0207 619 7100 : http://www.scope.org.uk
Shingles Support Society: 41 North Road, London, N7 9DP : Tel 0207 607 9661: Helpline 0845 123 2305 : http://www.herpes.org.uk
Sickle Cell Society: 54 Station Road, Harlesden, London, NW10 4UA : Tel 0207 961 7795 : http://www.sicklecellsociety.org
Sleep Matters: PO Box 3087, London, W4 4ZP: Helpline 0208 994 9874 (6 pm – 8 pm, Mon – Fri).
Smile, 8 Oxford Road, Bootle, Merseyside L20 9HW, tel 0151 284 3822, support groups for people living with pain.
Spinal Injuries Association: SIA House, 2Trueman Place, Oldbrook, Milton Keynes MK6 2HH, Tel 0845 678 6633, http://www.spinal.co.uk
The Stroke Association: 240 City Road, London, EC1V 2PR : Helpline 0207 566 0300 : http://www.stroke.org.uk
Tripscope: Information and advice about travel and transport for people with disabilities: The Courtyard, Evelyn Road, London, W4 5JL : Tel 0208 994 9294 : also Tripscope South West, The Vassall Centre, Gill Avenue Bristol, BS16 2QQ : Helpline for both offices Tel/Mincom 0345 585641.
Vulval Pain Society, PO Box 7804, Nottingham NG3 5ZQ, http://www.vulvalpainsociety.org.
Trigeminal Neuralgia Association UK, PO Box 234, Oxted, Surrey RH8 8BE, tel 01883 370214, http://www.tna.org.uk/.

COUNSELLING AND WELFARE SERVICES

Family Welfare Association: 501-505 Kingsland Road, London, E8 4AU : Tel 020 7254 6251: http://www.fwa.org.uk
ParentAbility: an NCT network supporting pregnancy and parenthood for people with disabilities: contact National Childbirth Trust, Alexandra House, Oldham Terrace, London, W3 6NH : Tel 020 8992 2616 for information.
Relate: marriage guidance service. See your local phone book; in Scotland, look under Couple Counseling Scotland: www.relate.org.uk: http://www.couplecounselling.org

Fact Sheet © Pain Concern. Last updated April 2010. Whilst we endeavour to ensure that all the information is correct, Pain Concern can take no responsibility for errors and cannot guarantee the quality of services or merchandise.